I see you. Balancing openness with privacy when dealing with chronic health issues is tough. But it’s your story, and you don’t give up the right to share it openly because others feel a blast of discomfort against their comfort zones every time you do.
You get to decide what to share, and with whom. Those suggesting you’re whining (I’ve been told that too), are those who cannot fathom the weight of your experience. They also wish to minimize it, so they can relegate it to the pile of “Not my problem”.
You can’t change what you don’t acknowledge, nor can you support someone without knowing their needs and the ways to meet them best. So your friends and loved ones, know how to help you feel supported and safe with them.
We don’t share our stories to fan the flames of blame and victimhood. We do it to light a candle of wisdom. To open minds to the hamlets of the human experience, with greater suffering and fewer resources.
Discussion without discomfort is complacency, where challenging ideas are absent, stifling growth and social change. It’s an echo chamber instead of a forum, and uncomfortable conversations are needed if we’re to move beyond our biases and into a realm of broader understanding and mutual growth.